March 2015 archive

The Not so Basic Basics

So in trying to decide how to write these blog posts, the thought of doing it chronologically just about sent me into a tailspin. With my brain still mushy, I was overwhelmed by having to do research and try to make my memory work in a way it hasn’t in several years.

So I will be posting whatever event, happening, feeling, or gibberish Iʼm feeling at the time of writing. To start with though, I thought a little more info might be wise. 

So this is blog post number one. It is going to be pretty straightforward. Below is part of an article I saw awhile back. I left in the text I sent along with the list to a friend.

I came across this Lyme article. I thought I would share this part with you. Of this list, I could only count three symptoms I didn’t have (obviously I don’t have testicular problems) This will give you an inkling into the horror of this disease.

Here is a group of symptoms that are associated with the tick-borne infections and coinfections:

  • Cough, shortness of breath
  • Unexplained fevers, chills, sweats
  • Cystitis
  • Fatigue
  • Chest plain and heart palpitations
  • Cardiac irregularity
  • Double or blurry vision, pain or floaters
  • Photophobia
  • Hair loss
  • Fever
  • Tick bite(s)
  • Rash at bite site or other areas
  • Difficulty swallowing
  • Swollen glands
  • Sore throat
  • Swelling around the eyes
  • Unexplained weight loss or gain
  • Buzzing, ringing or ear pain
  • Difficulty eating
  • Nausea or vomiting
  • Diarrhea or constipation
  • Tremors
  • Eyelid and facial twitching or Bell’s Palsy
  • Joint pain and swelling
  • Abdominal cramping or pain
  • Irritable bladder or bladder dysfunction
  • Testicular or pelvis pain
  • Neck cricks, cracks or stiffness
  • Joint or back stiffness
  • Muscle pain or cramps
  • Insomnia
  • TMJ (jaw pain)
  • Headaches
  • Tingling or numbness
  • Poor balance
  • Difficulty walking
  • Seizure activity
  • Stabbing sensations
  • Dizziness
  • Personality changes
  • Mood swings
  • Irritability
  • Depression
  • Confusion
  • Anxiety
  • Difficulty concentrating or reading
  • Gastritis
  • Menstrual irregularity
  • Loss of libido
  • Trouble speaking
  • Disorientation


I’d like to add a couple of other things to this list. I don’t know if others have these issues or not, but I sure do.

Intense sense of sound. Sometimes the smallest sounds, (music playing in another room or birds chirping) can sound like sound bombs going off all around me. It can literally send me into a rage. My non Lyme friends don’t seem to have this issue so I’m assuming it’s just another added bonus of the disease.

Along with a heightened sense of sound I also have a heightened sense of touch. Cotton is my best friend. For years I couldn’t put anything wool or many other fabrics near my skin. Not even cashmere. I would break out in hives if certain fibers touched my body.

Lastly, I hear, yes hear,  my own nervous system. This one took me a long time to figure out.  

I found a wonderful healer who told me the constant white noise coupled with high pitched ringing that I’ve had going on in my head 24/7 for years and years is   actually my nervous system. She explained it like this: Picture a rope going up your back all neat and tightly twisted. Then picture that rope with the fibers unravelling and sparking. That’s my system.

I asked my Lyme doctor about this and he agreed and said this is common for Lyme sufferers.